Primary Progressive Aphasia (PPA) Advocacy & Awareness
Our Commitment to Advocacy
At the HAARC Center, we understand that Primary Progressive Aphasia (PPA) affects not only those diagnosed but their families and caregivers as well. Our advocacy efforts focus on creating supportive environments, reducing stigma, and enhancing quality of life for all affected by PPA.
We work to empower individuals with PPA by:
- Promoting personalized communication strategies
- Advocating for accessible community services
- Collaborating with healthcare providers to improve care protocols
- Supporting families with resources and education
- Working with governmental and non-governmental organizations for care and services
Raising Awareness
Our awareness efforts include:
- Educational workshops for healthcare professionals
- Community outreach programs
- Development of informational resources
- Media campaigns to highlight PPA experiences
- Partnerships with organizations like Run4Papa
Through increased awareness, we can foster more inclusive communities and improve support systems for those living with PPA.
Our Partnerships
At HAARC Center, we believe in the power of collaboration. By forming strategic partnerships with organizations that share our mission, we can amplify our impact and reach more individuals affected by PPA. Our partnerships extend across multiple stakeholders including research institutions, healthcare providers, community organizations, governmental and non-governmental organizations as well as grassroots initiatives.
Our Partnership with Run4Papa
Run4Papa was founded by Jason Boschan, whose grandfather, Dr. Louis “Papa” Heyman, was diagnosed with PPA. Witnessing the challenges his grandfather faced, Jason established Run4Papa to raise awareness and funds for neurodegenerative disease research.
Through running marathons across the world, Jason has become a powerful advocate for those affected by PPA and related conditions.
Learn more about Jason’s story here.
